Patient-reported Outcomes in Cancer - Capture

Learning Objectives

This session will give an overview of the history and achievements in patient-reported outcomes (PROs) in cancer over the past 3 decades. By the end of this webinar the participants will be able to analyze:

  • The work done by the European Organization for Research and Treatment of Cancer (EORTC) Quality of Life Group in the design, use and interpretation of cancer PROs.
  • The current context of PRO measures in this area (including comparison with the US-based FACIT and more latterly the PROMIS® approach).
  • The development of modern measurement approaches will also be presented in how they can help transform the use of PRO measures in cancer research and practice in the 21st century.

Presenter's Biography

Deb Fitzsimmons has over 20 years’ experience in health services and outcomes research. Her specialist interests are in cancer and chronic health conditions. Deb has a national and international profile of working with others including National Health Service (NHS) health boards/ trusts, other public sector bodies, The National Institute for Health and Care Excellence (NICE), Welsh Government, and globally recognised research groups.  She is on the executive of the EORTC Quality of Life Group- a world leading research group in the field of patient-reported outcomes in cancer.  Recently completed work includes evaluation of cost-effectiveness of stem cell transplantation and secondary analysis of the national cancer patient survey to inform information and support needs guidance; recently published in NICE guidance NG52 (management of non-Hodgkin’s Lymphoma).

This work is supported by grant number R25HS023214 from the Agency for Healthcare Research and Quality.